Advocacy & giving back
From living with juvenile dermatomyositis to championing young voices, this space is dedicated to community support, shared stories, and purposeful outreach. Together, we can ensure no child, teen, or family ever feels alone on this journey.
Raising awareness with the Myositis Moon Walk
Growing up with Juvenile Dermatomyositis taught me firsthand the vital importance of connection, visibility, and mutual support. Through initiatives like the Myositis Moon Walk, educational resources, and speaking engagements, I work to bring rare disease journeys into the light and help families discover strength in community.
Resources for Kids & Families
Living with JDM can be overwhelming for kids and the people who love them. Through books and resources created from lived experience, I hope to help children understand their diagnosis, feel less alone, and find the words to express what they’re going through. These resources also help families, teachers, and classmates better understand life with JDM and how they can offer meaningful support.
Faith, outreach, and Horses & Hope
Giving back extends beyond awareness events into heartfelt, restorative community care. Through involvement with Horses & Hope—a faith-based outreach close to my heart—I support spaces where healing, comfort, and encouragement help families renew their hope even when life takes unexpected turns.